Traveling through some forums I have seen many people describing the symptoms of Narcolepsy d and either sleep paralysis, the need for sleep or rather, the uncontrollable desire to sleep during the day several times, fragmented sleep at night ... . but what ends up not visiting a doctor who can give an answer?
The purpose of this blog is that everyone can read the symptoms, know they are not "imagining" that this happens, you are well informed and when they arise in the consultation were asked to perform the necessary studies. We are not alone if there is another who shares his experience and create solidarity possible.
Let the dark to Medieval times, today it seems like a fiction, is diagnostic.
I kept asking, but the answer was no, until he got a friend who suggested I visit the neurologist. She had epilepsy and I better understand these issues. From there I jumped at the reading of "The Man Who Mistook His Wife for a Hat" by Oliver Sacks recognized neurologist, to explore the variety of neurological diseases.
http://es.wikipedia.org/wiki/Oliver_Sacks
Now that we're communicating between all could go one step further and see what rights we have in society, at least in Argentina, you think?
As a pre-existing (but do not know you have it) the prepaid not going to accept. I was taken down about neurology services when I wanted to be a member of the British Hospital. Public hospitals .... few if any have the equipment for polysomnography. What about medications? Son Faces.
Friends, do not be discouraged with the latter. If you were a law of obesity .... maybe we can.
This post is dedicated to Juan, Almeria, Laura from Argentina and Andromeda in Madrid since his blog http://luzdeandromeda.blogspot.com/ spread it.
Until next time good dreams.
Sleeping Beauty
April 22nd 2009 at 8:30
Hi Sleeping Beauty, I appreciate your dedication but you know it was not necessary. It is very important what you say, and most important is the commitment that we acquire with each other to disseminate and help within our means to other people, ranging, as we went until we had all the luck in the diagnosis, because you know very well that hardly a day I did not have to go to medical emergencies, but of course neither I nor emergency physicians knew was happening, but what good is that now if you know and we and we are obliged to give it to known. Sleeping Beauty, I leave you to your election you give my information, you know I do not care, you can give my blog, my e-mail, all you needed. And thank you very much for your dedication and for the other. Until now. Juan kisses.
22nd April 2009 at 20:28
Dear John, the dedication is well deserved. On long Web search by typing the word Narcolepsy i came across your blog and I said, there are good people out there willing to share and help despite the discomforts!
I felt less alone and took the idea.
I give infinite thanks.
A hug.
April 26th 2009 at 12:28
I'm reading everything and gives with mine. They said that I have epilepsy and was given sleep carbamazepine and left, I did nothing. I am coming for several pages that explain this. Thank you. I will tell my doctor
Carlos Alberto, Tucumán
27th April 2009 at 2:45
Hi Sleeping Beauty! and go to the nick is super cute eh? You do not know how good it felt to be "found"! waow, is like being a rare bug that is captured by a magnifying glass! haha! Well maybe I exaggerated a poc it? I read all the blogs and was "chopped" (more anxious) in effect, polysomnographic and multiple sleep latency (I think that it is said) are not available This is the reason why I made such eh estudios.Además terrible scares me to be on medication for stimulants and antidepressants for life that I will bring consequences liver, kidney and / or gastric ... not want to be a Zombie! : '(Jaja! I know that may seem a bit "alarmist" but even if I have in the balance as usual or taking drugs and all that goes, well I think even a craving for beer for the heat should be punished! auchs .... I am informed if I do not know that both improves the quality of life and good, to keep explaining to everyone who asks me letty Hey, why not work? uhh! will roll!
Thanks for chikilla for this space! Thousand and One .... thanks!
Sweet dreams ....
27th April 2009 at 17:14
Hi Letty! Thanks for responding and I understand, yes I understand. I see you know much about it and that's good to know ourselves. We can talk about medications ... it is true that the remedy should not bring more problems than the disease.
Find the doctor who is an alchemist.
We kept in touch, welcome!!
And sweet dreams for you ...
Sleeping Beauty
May 5th 2009 at 1:25
Hello Bella Duermiente, thanks for this post! I wanted to tell you and of course everyone who reads this q q just created a blog to various experiences and contributions is http://www.paralisisaldormir.blogspot.com . Since you are already invited to participate for the q you please, and experiences. I mention this site yours q I think a tremendous help. Thanks and a big kiss!
May 5th 2009 at 22:37
Laura Bravo! We sum .... that's what we need, Your presence is very important, like all of us in this.
A hug!!
1st February 2010 at 13:02
hello friends I'm super s happy to know that there are people who have suffered this evil so for me since my narcolepsy but it is the paralysis of painfu sueñop know if pc siemnten mno pain or burning in the muscles m apart is excruciating for I would like my EXPERIENCE conpartieran that here in Chile because the treatment is very expensive the worst is that there is little talk of the subject I remember I have always had since I have use of reason and poer that my fam, and friends also ilioa tease that weep in sleep talking and sleep the worst way, I hope comentten on the subject of sleep paralysis and if they suffer pain. garcias and greetings atte marko
2nd February 2010 at 16:34
Hi Marko
There are fellow forum Chile, so I'm glad to join another neighbor.
I understand everything but I have a doubt about the pain. Will contractures caused paralysis leaves your sore muscles?
Well, the teasing is hard but .... have to excuse them because they understand that it is a disease, there has needed treatment and dissemination. If you go to the Forum and you put the question many will reply if I passed or not. Do not forget that we are narcoleptic but differ in details of symptoms.
Best regards, take care and I am glad to serve you read the comments of all
Sleeping Beauty