In the short time that this blog I have received comments, questions, requests for help and information.
Although the same disease will lead to withdrawal and confusion, remarked once again the importance of communicating with us to give a positive outcome.
There is little doubt among those affected, not everyone has narcolepsy or do not know for having some of the manifestations of the same and not the whole picture. If autoimmune, or maybe a predisposing gene and so is the list of possibilities.
That's from the medical and technical as you will read in the other post is very wide spectrum .........
The question is: What's wrong with you to the disease or with uncertainty if you have not diagnosed?
What are the steps?
How to access health care?
What medication is prescribed and you can not buy for the price?
Would you need a therapist to relieve the burden of disease?
Do you find that psychologists "interpret" your neurological symptoms when they are?
From the NEA (Spain) Mar told me are trying to spread in schools the information needed to understand whether the "lack of performance" may be due to narcolepsy.
I added a link, which created Murcia Germain giving aid to a student and I find something worthy of note, teachers investigating the difficulties of their students and support them! See it on the right side of the page.
Everyone is looking for answers so it is best that we are in contact, anonymously if you wish. Everything will be respected in this space and will soon try to build support group, self help, advice and a bit of battle, why not ...
I invite you to stay away from the place of the world where you are
Do not be afraid to find out what is happening to you is the only way to live better
tengonarcolepsia@hotmail.com for all your questions
Sweet dreams and rest your best!
Sleeping Beauty
17th June 2009 at 21:56
Thanks to everyone who contacted the mail, post your questions!
A hug
Sleeping Beauty
June 18th 2009 at 20:21
Hi John, I see no reason to worry, your link will be restored is an issue with the web master is rearming space. And will again.
A greeting and encouragement!
Sleeping Beauty
10th January 2010 at 7:28
HELLO
ALWAYS SUFFER FROM Narcolepsy, which caused me GUILT, SHAME, THE LACK OF UNDERSTANDING AND MOCK MY FAMILY AND FRIENDS.
At 30 and was diagnosed PICO "Narcolepsy" THE UNIVERSITY OF THE INSTITUTE OF ISRAEL AND I TECNION medicated with Ritalin, THING THAT GAVE ME QUALITY OF LIFE. -
HERE IN ARGENTINA THAT ALTHOUGH STUDIES SHOW ME THAT I HAVE BIG SLEEP DISORDERS NOT ME MEDIQUEN ACHIEVEMENT, AND I THINK THAT IS SO COMPLICATED THAT WE ARE THE RECIPES HAVE TO GIVE. -
QUESTION: WHERE CAN I UNDERSTAND THAT THIS PROBLEM? AND IF THERE IS HERE IN BUENOS AIRES Narcoleptic GROUPING OF ANY AND WOULD BE GOOD BUT WE AGRUPARAMOS BECAUSE "THE UNION IS STRENGTH"
ATTE. SILVIA
January 11th 2010 at 10:54
Hello Silvia, I / we perfectly well for you. Here are at least two or three sleep specialists will guide you well. As for the meetings, we make them. I wrote to the dir of the blog and leave your information, notify you when the next.
A love
Sleeping Beauty
January 14th 2010 at 16:45
I want to receive information on meetings
28th January 2010 at 15:54
hello my name is marta and recently I have been diagnosed with narcolepsy but the ago 8años.me des suffer like to talk to someone with my condition because I need to clarify many questions thanks
18th February 2010 at 18:27
Hey, call me and I have 35 years Wifi. In high school I fell asleep in class, I had a couple of accidents at the wheel and passenger's all get on the car and go to sleep, today I do not drive on long trips, I can not read a book more than one Once I found the face in the dish during the meal. About 12 years ago I started having some dreams / nightmares rare, hallucinations, I started to see shadows that look like a thief or notice as you play and sit on your bed at night. Also began to notice about 8 years ago some small fades to tell jokes, I "flip" the eyes and I have to put your knees, I have come to fall to the ground but every day I see him more closely because the catapelgias are increasingly more intense and different emotions, but this is what worries me. I have never visited a neurologist but obviously I have Narcolepsy. I just discover this forum and I understand perfectly well that I needed someone to understand me, I just get laughs and criticism. Goodbye, I'll keep in touch, a hug.
13th July 2010 at 12:50
HELLO, I HAVE APPROX. 6 YEARS WITH THIS DISEASE, FOR ALMOST A YEAR GAVE NAME TO MY PROBLEM BUT I HAVE DOUBTS ABOUT ENOUGH how to cope. MY COLLEAGUES HAVE NO IDEA of my condition, BUT I AM A VICTIM OF COMMENTS AND THEY ridicule from. HE HAD HALLUCINATIONS, MY KNEES AND I HAVE NOT ANSWERED ARRIVED FALL DURING A TIME I WAS medicated Modiodal BUT THE INVESTIGATION AND THAT AND SHOULD NOT TAKE MORE THAN 7 MONTHS IN A ROW, I AM BEING CARED FOR BY A Neurosurgeon ISSSTE BUT I HAVE NOT SUCCESSFUL CHANGE DIRECTION, AWAY from ME QUITO DRUG AND I AM NOT HIM FOR MORE THAN 2 MONTHS, AND SOMETIMES I CAN NOT STAY AWAKE. PRIMARY TEACHER I AM AND I HAVE NOTICED THAT HELP ME MUCH THE FACT OF BEING IN TOUCH WITH MY STUDENTS AND CONSTANTLY WORK IN THE CLASSROOM. I FOUND IN NAYARIT NO HELP. WOULD FIND ME A PLACE WHERE CAN ATTEND AS IS. YOU TELL ME ANY SPECIALIST CLINIC IN MEXICO Narcolepsy.
14th July 2010 at 8:55
Hi Rocio, I do not understand why you took the medication, and they do not know why they say that is not taken for more than 7 months!! I take about 4 years ago, but some come with this much longer .... Log in to this Blog
http://www.narcolepsiamexico.com/
and it certainly tells you any medical center for further consultation, it is not fair that you have to stop your activities. Very encouraging and we are here to answer.
A love
Sleeping Beauty
August 24th 2010 at 9:09
I'm good student. while I suffer sleep disorder there are times I do not stop throughout the day in bed because I have always dream. classes there are times when sickness and I just fell asleep. I also fell asleep on the subway also drink coffee to daydream contrarestarlo but the effect only lasts a few minutes. eh not gone to a doctor to check that I saw him no importance but is starting to affect me badly if someone can guide me greetings from Venezuela would be complasido ^ ^.
24th August 2010 at 12:43
Hi Fran, I have no data from health centers in Venezuela, but the right track is that you ask your doctor to suggest a neurologist and sleep specialist if better. It is the way forward to make your diagnótico and improve your condition, Good luck and greetings from Argentina
September 10th 2010 at 23:34
HELLO, I AM DEW, JUST LIKE ME KNOW IF THE DISORDER IS A PROGRESSIVE Narcolepsy, IF THAT IS THE TIME TO STEP lapses DREAMS WILL INCREASE????
17th September 2010 at 21:19
Dew, no proof of that, I think on the contrary, are best handled. Remember, however, that not everyone feels hypersomnia, some highlight the other symptoms.
March 25th 2011 at 14:30
hello please help but I find I have no narcolepcia medical sleep disorders in toluca mexico
4th April 2011 at 23:09
Lucy, en face Narcolepsy is a group of Mexico, Letty Herrera or perhaps Payito can give you some pointers. Luck!
5th April 2011 at 13:23
I want to know the data in order to request the certificate of disability in the hospital off., thanks
13th June 2011 at 12:41
Hi, I'm so desperate for sleep periods that I have now because I'm not functional in my work and I have to stay economically, logically it has fallen much my quality of life began about five years ago, I would like guidance please. thank you very much.
10th July 2011 at 0:02
Hi, my daughter has narcolpesia ... I would like to know I can do to treat it .. is 16 and since I was 8 months started with some problems that desmallaba or fell asleep and took her to the hospital and could pierce with anything and did not wake up .. always want to know what it was but I never gave a concrete answer a few days ago has been diagnosed with narcolepsy and gutaria I know how to make a treatment as is possible with this disease who can not learn please answer me my mail ... ATTE Saray.