I found a very delicate phrase is "incidental finding" meaning that he was not looking for anything, much worse than that, maybe a doctor reluctantly agreed to enter a study because the patient reported a list of complaints.
So are some diseases and sometimes later.
Do not panic about that narcolepsy, the disease itself do not think anyone has died, and if anyone know tell me I ask.
Let's look at important points, he spoke at the beginning of diagnosis and hard to get but once you're there with your results will be very easy to get filled with pills and very little advice and / or warnings.
None of you has an ID collar or bracelet to alert in case of accident or emergency to be admitted that there are medications that can be almost fatal. And is not the same cataplexy that fainting ... A neurologist and a dermatologist a few years ago arguing in front of me.
If not give me Benadryl, one said that allergy and possible glottis edema was killing me, the other that I would enter a state of torpor and paralysis that would leave me out of play a week.
The fear did take ¼ of the dose for two days, but warned me never use something like diazepam as hypersomnia combined with paralysis would be complicated. This drug makes it difficult to be myorelaxant movement and momentum of "wanting out" of trance almost impossible, so as to pretend a deep breath. By this I mean that if the query is short, just have a prescription, lab happy and few instructions for your daily life and deal with everything.
Exigile to your doctor to explain, you have to go with the questions listed in a list. They are required to answer and if not, please, change doctors!
Many of you keep quiet at work suffering from narcolepsy and does well, they're going to fire.
The school is different, parents and teachers should pay real attention to a student if it is too tired and not performing well
And to drive?
Here is a complicated issue that may be the tip of the iceberg famous have never seen ... and can help awaken dormant authorities.
If you have narcolepsy, and you conduct a car is your decision, you should not do ...
The Blog of Antoni, who started writing long before me on the subject, I found this .....
"I commented, the general driving rules, RD 1598/2004 of July 2, Annex IV" mental and behavioral disorders "Exploration 10.6, says that people with narcolepsy can not drive any motor vehicle. So if anything happens, the insurance is not responsible for data hiding ....
Charter of Pedestrian Rights. Adopted by the European Parliament in October 1988. "
In Spain you declare that you have is your responsibility if you accidentas but .... what if you kill someone else?
How is legislation in Argentina and Latin America? I do not know ...
You thought that perhaps in Argentina there are many long distance drivers who have it and then desbarrancan?
Who fixed it?
And airline pilots?
Once and for all who have polysomnographs available to a neurologist specializing in narcolepsy in a public hospital and to obtain a driving license ... well, you decide.
Do not say later that they did not know that there is much of accidents that result from this.
Greetings to all, encouragement and good dreams
Sleeping Beauty
4th March 2010 at 21:35
Hello!
As Bella is allergy medications that I get really bad, I was once medicated Cetirizine, take it at night, but despite this the next day I went wrong, I sleep attacks all day, and the worst I fall asleep at work, I must say I felt bad to lean a moment, but it was not restful, since then I went to take it anymore. With loratadine is not going so bad, that if I take it only at night and when strictly necessary.
Hugs,
20th March 2010 at 9:28
Hi Bella! It is always comforting to find that idea in your words we head hovers and never finished shape. Does the driving question? Right on target. Every time I drive, and start an attack with ridiculously uncontrolled yawning, or is difficult for me to remain 100 percent alert, or beginning to realize that I am entering "autopilot", inevitably think, "Should I drive? ¿I can be a danger to others or me? "Especially when in the back of the car took my two girls, who by luck with your children keep me busy typical alert. So my driving is limited to the minimum: picking them up to school or take a dance or swimming. Night driving is discarded if possible. As long trips qu when we are on vacation. And if the night before the dream was disastrous decision to opt for full vigicer. So far my empirical knowledge of this facet of narcolepsy. A big salute to all, especially for the fairy dream, the woman who carries the torch that lights up the night for those who can not find a glimmer of hope for you Bella, a bear hug fortísmo ... Thanks and see you soon I hope.
23rd March 2010 at 7:29
Hello, I also wanted to express my opinion on this subject "Drive".
The former would indicate that the danger comes from two of the symptoms: Cataplexy and Hipersomia.
Cataplexy is unpredictable and can last from a few seconds to more than 1 minute. Ls could affect facial muscles slightly or you can fall inert entire body.
In my case "were" for no more than 5sec. as mild dizziness and above all the others felt in the facial muscles.
Anyway since taking "Sertraline" and for many years, for me there cataplexy.
On the other hand we have the hipersomia, "that" if there is no way to get rid of it, but do not confuse, not fainting, sees it coming and no decisions to make, you stop at a gas station, walk out the first deviation etc ...
Clearly you can not be driver by trade, or drive at work, when liability is not you who decides when you can drive or not, but other than that if you can, I have 38, 20, card and never I have had no accidents in sleep, that if I follow my guidelines:
Never drive (car) just up in the morning, I always go 1/2 or 1 hour after sleep and after 10 or 15 min. (I ask for the body, no more). On short trips (1 or 1.5 hours) there are no problems, on long trips never go alone, when I noticed that begins, we stopped (always where permitted)
and driving my wife has passed or accompanying sleep what I please and when I get over to grab him again and continue to where it is needed (usually always take tea or cola), has never been any problems or risks, if I have something clear is that if you put up the dream eventually fall asleep and my ever happened to me. (On this I think are more threatening people without narcolepsy who think they can endure and ultimately what happens happens.)
On the side comes the obligation driving to and from work. I get up at 06:30, I usually take 30 to 45 minutes by car, to go
no traffic, and slow to return soon and if I notice that I feel I'm tired and I sleep about 10 minutes at work or in the car before you leave,
but still this problem was solved, for about ten years I come and go in "Moto" always, rain or cold (no snow here or lowers the temperature of 0 º)
In bike never gave me sleep.
Of course I can not do what you want when you want, but that does not mean we can not drive ever.
March 25th 2010 at 20:30
Santos and Nana, I'm talking about the drivers of business is that there should be informed narcolepsy or controlled. Here in Argentina there are drivers whatever, they do double duty .... that it is fatal for the driver and the pedestrian. Of course we have control, but those who do not know what is happening yet? Of those people I speak, they do not know, or so and have the responsibility to bring people in a long distance bus and many hours ....
A fondness for all
Sleeping Beauty
7th April 2010 at 11:33
Hello everyone, I'm new in this picture because I was diagnosed recently
narcolepsy.
I have 30 years and I'm from bs as. And I'm being met with Dr. Podesta
I'm about to make the driving record, I did the course
management before learning of the test result of latency
and then I found out I have this disease. Anyway we do not
I can drive but it is good to have for any emergency.
True, there are many car accidents and many of them are
by narcolepsy or fatigue.
I hope you keep in touch in the next forum, support each other
is what encourages us to keep awake, fighting for this
disease so tiring.
Give my love!
22nd April 2010 at 4:00
I make short trips for my city, but I must say that in some
Used if I had some minor accidents by forgetfulness .. anyway
I'm driving .. if not already off and let's go
28th May 2010 at 14:26
My comment to the issue is this, I drive by I can and if he could not would not do, If I have time constraints in the day, but the rest I can drive like before I came along, why should not I , there will be people who can not and people who can, it thinks that everyone who already are mayorcitos.Porcierto visvilidad some people have reduced and the law leaves them with restrinciones.La circular narcolepsy for many of us is reduced to almost a few hours Day. Some people does not even have been hearing that if he takes ply aggressive sleep after dinner, I spent 2 years was very wrong to take the car and do not catch me 600m not sleep, I can drive well, 1000% porencima that anyone passing the 50 años.Tengo card 9 years I have the maximum bonus on the insurance, no stroke, nor Rascon To no avail and this issue must be careful we are not a danger to people do not need solciedad.Las is narcolepsicas to be dangerous are solas.Pues not feel useless or nada.Saludos incapazitado for everything.
Sleeping Beauty is not important to me delete it, A besete.
28th May 2010 at 21:24
Dario, of course I do not delete it, is nothing to express. Just when I think I disagree with something. I emphasize what you say are not incapable far and I understand that you know clearly when the dream is coming and there is plenty dangerous people and not for narcolepsy!! A greeting
Sleeping Beauty
13th June 2010 at 19:43
Hello ..! Well I do not condzuco because I have no car ..! haha .. Seriously, I think according to the symptoms you have, in addition to sleep attacks (eg cataplexy ..) have to do a thorough evaluation of risk to themselves and most of us depend on others and are in the same car. In my case, I am co-pilot and the passenger seat, did not last even 5 mins .... and I cabezeando whole project .... sleepy but still think I'm fighting him and you beat me. However, when I drive and I keep active, I have no problems when driving .. (when I do).
Changing the subject a bit, I think the main factor in accidents in Buenos Aires is the irresponsibility of people driving too fast, excessive alcohol, and without respecting traffic rules. I do not think that narcolepsy is the main reason, because we are less well statistically, but as I mentioned we should do a self assessment of the risks when driving.
6th July 2010 at 12:47
mmm ... I make a correction ... at school / tertiary / IF power is a problem, often large, but obviously you do not believe q leading to death (unless the student discriminated q is very depressed and committed suicide) because I myself have I suffered much, and suffering-by attacks of sleep in class ¬ ¬
years finished high school, I am studying a teacher, and nothing has changed for me about going to school ... when I slept in class (especially math) and I tried to vague or rude ... at that time did not know this had q name or knew or had q q was, so I could not put q excuse to condone the situation and on top were times when q was very depressing (but never attempt suicide) was horrible having it not knowing what was q q all bothered me so, no one diagnosed anything, nobody pays attention to students, stories about educational psychology and more blabla bla are lies ... nobody helps you, not even your parents, they're too vague will say q / a and you I always complain
if not already known from openly ... q ¿psychologist will say "this / a boy / a have narcolepsy"?? clubs! none of that happens, as I said nobody cares, at most they ask if you sleep well at night or if you are sick (flu-like or something) but nobody will notice ... most curious is the q q-assisted NO more q are the tranquilitos fell asleep in class, but the bustling q deliberately annoy everyone ... that always gave me very angry, because I irked mistreated and I do not anyone (not even snore when I slept) so I can say q q you are wrong about
I do not know how it will be in other situations, yes, but not to underestimate the position of those who are students and are discriminated against by this ... well ... you suffer is worse when q do not know what's wrong, because being young and inexperienced you make bocho a thousand ways, q q're lazy and you're useless it may end up thinking ... and fall into the "self-fulfilling prophecy," to take me years to recover from the brainwashing and no longer suffer more depression as it had before q , but I'm narcoleptic
q I am now at a higher level I decided to significantly reduce the classes q I ... I take time between classes to go home and sleep for a while ... then I go back to school and with more energy, but I had to make many sacrifices in q my studies for this, and it costs money and takes time for the race ... no small feat as you think :/
6th July 2010 at 12:48
by the way, nice blog, interesting
Regards salu2
8th December 2010 at 15:24
Dear Sleeping Beauty I'd like go on television and represent the part of narcolepsy that although we remain good, I think each case should be assessed separately, for example I never sleep I've had cataplexy or even if I have lost sleep and concentration at some time or another but still quite bearable and I Adapted my life trying to follow routines and now I feel great:
I feel as dangerous as anyone driving and as my abilities are those that are no one will decide for myself that I can not drive
By the way I hang glider and if I could not be found either because the sport is very demanding
Every weekend I demonstrate my capabilities for 8 years!
If ever the illness limits me and I will not drive then aid as appropriate but enough that we branded a dangerous generalization.
A beautiful kiss to rest
8th December 2010 at 22:35
I agree, have the life of all, do sports, work, study and sometimes I stop there, the point is to recognize the treatments (such as preexisting disease, some do not take pre paid). I have no doubt that many can drive anything, a bike, an airplane and some surgeons scalpel. In this society is frowned upon sleep.
Sleep is something that is associated with leisure (much needed!), Unwillingness to meet schedules. You can allow all and if we have a legal defense we could choose our time, in order to repeat always the same. Some have a hard time about this issue. 10 hours of work sonaconsejables not unless we decide to give modafinil to be pureed.
Thanks for the greetings and get some rest too! Great what the hang gliding!