The forum is talking a lot about drugs and their price, work and silence
Let's break things down and start work
As a joke I said above: do not tell ... you get fired ....
Do not take the foot of the letter but there are cases that we have a neurological disease is a good excuse to suggest that we are not with the proper performance.
That is, if you do not have anything going to happen (not I ever had labor problems, only that I held my sleep or I took a nap for 10 minutes in the bathroom) but if they say, is / are the target for that we have no concentration and the like ... and this time I said ...
I know doctors who have, singers, athletes, writers, journalists and would be surprised how many more ... (the professions are a detail that serves to make you fool)
What we have is the ability to defend ourselves and make ourselves heard and that's another topic.
Medications, they are very expensive. The account between dollars and euros is like a bestiality. And not everything is about money, it's see how you feel each medication. I thought we were slaves to the laboratory and modafinil but some customers are lost because many say they do not take it for severe headaches and side effects to the passing hours, comes late and some feel the sharp drop and that depends on how your doctor tells
We must rethink the talk with the neurologist, that this is a specialist in sleep better if it is in Narcolepsy and your experience makes you understand the side effects and do not leave us with a recipe in hand and little explanation. Insist, ask to feel that they have sufficient clarity.
Have at hand a prescription written by him / her in saying that we suffer narcolepsy, and for submission to a consultation for another reason. We need to be identified, as in epilepsy so that in case of need to know that there are medications that can not consume
The other point is the silence, that which makes it between rare diseases when diagnosed below, the responsibility is todos.De some doctors for not knowing evaluate how well do we track and we better explain to people what it is this is about.
Back to sources and categoricemos pathology.
Gelineau syndrome
It is characterized by the presence of hits of daytime sleepiness.
There may be cataplejías (extreme muscle paralysis or weakness in part or whole body),
Sleep paralysis is often accompanied by,
Hypnagogic hallucinations (visions in sleep-wake transition) or hypnopompic (sleep-wake transition)
These symptoms have all or part, makes narcolepsy.
Difundilo you until you become the nightmare of another, we've been through too many nightmares, dangers and bad times of ignorance of others.
Greetings to all and good dreams
Sleeping Beauty
11th April 2010 at 17:04
I work (not last) chooses to say I had migraines and insomnia, do not ask many questions after that.
14th April 2010 at 12:09
If so, anyone can get from insomnia, they may even say that last night was to shake and alcohol .... but everything is ok. But something is called Narcolepsy? changes history there, and I hung the poster of "poor" will have to remain silent ....?
22nd April 2010 at 15:01
Hi Bella! I loved the title. After all, we would come to be "almost human", because as we walk half a revolution, we did not form a "whole" and spent much of life, or sleeping, or thinking about sleep ... and over live in limbo by developing a "rare" disease that has not reached the deaf ear of auditors fledged human beings, right? What a paradox ours. But we in the fight, which is cruel and is great. Nana kisses ...
June 18th 2010 at 5:26
hello! I love your blog, very well written and well expressed all. Also I have narcolepsy and well, despite what it entails, to be an artist, it gives me many things that I can then use to create things.
And the fact that we put obstacles disease makes us more capacity to overcome
6th July 2010 at 9:03
Hello, I am a student of 2nd Batxillerato Catalan, and I'm doing a job on narcolepsa recerca. I would like to contact any affected to inform me of the disease, because we hardly know anything. if you can help me contestases megustaria qe.
Thanks
September 24th 2010 at 12:04
Hi Moon. Could see your work? I liked the fact that you can make out of the situation and turn around converting it into something positive. catches my attention and I would like to see the result!
Health for all!