Hi everybody s those who are looking information on narcolepsy, sleep paralysis, cataplejías, hipersomia, and other discomfort can be added, however small, to this condition ....
In Spain on holiday, enjoying or suffering the summer, since the lack of air and excess heat are not very good for us and noticed his absence in recent months.
Mexico from the beginning, like Chile, gave us their experiences. Colombia is very close, for the invaluable presence of our friends Marce, Light, David and others who have narcolepsy but not in Argentina joined this project to come together to access to new research and try to disseminate, in a short time, in schools and universities to improve the quality of life for all of us. Andre de Chile but now in Buenos Aires and other Chileans who have written in the Forum. All America this
The recognition of social work, public hospitals and care centers in general we are concerned, the price of drugs as well.
The world is at your own pace and we're all with different problems. Each country has a health system, there are better or worse, but our aim should be recognized as patients who need treatment for life, until they discover something else.
Thus, scattered around the world, we go together to be heard and create a movement of awareness.
The U.S. has legislation that includes all or most of what we expect. France has come very far in terms of rights. Italy has also its association and the list goes on ....
This blog was born in Argentina, but there are everywhere. Mexico has its own and on facebook I have Narcolepsy find the address to join. No one is out of this enterprise of patients.
Narcolepsy is one more than we imagined and early diagnosis saves many discomforts and complications. Do not forget to consult a neurologist bringing you the information yourself, and other physicians, general practitioners and other specialties, we will be informing them what happens to us. Thus when we are anemic or have thyroid irregularity, or muscle tension by poor sleep, are treated equally without leaving perhaps a neuropathic pain product of the same and everything is part of a single History Clinic.
Thus, without banners or all together we will continue this path in which we decided to leave the darkness and support each other.
A big hug to all the usual and yet to come
Come back for more!
Sleeping Beauty
15th August 2010 at 13:00
Hi Bella!
I think the best thing that has happened in Argentina, is many nationalities come together for the same purpose; talk about narcolepsy, tell our stories and fight for disseminating and publicizing our abilities. This is just beginning, and the more we have more strength to follow pa ... Kisses.
September 3rd 2010 at 6:47
Unity is strength, says an old and tired that ... and to share what happens to us there are no borders. Whether here, in China or Spain, suffer the same conflicts, suffer in silence the incomprehension of the world and pull forward trying not to tire us both rowing arms. That's the real beauty of this blog, which attracts us, later or earlier, like a magnet. That is the real value of its creator, which reaches a detector unseen unusual places with a light of hope. To each his own subject, says Serrat, but beyond the personal stories and individuals who are narcoleptic, illness unites us and brings us, regardless of the actual distances in this vast world in which we live. So, welcome to everyone, and hallelujah for the creative spark to our Sleeping Beauty. Greetings from the freezing cold of Patagonia. Lullaby
16th September 2010 at 15:29
Hi Bella! I have 16 years but I have narcolepsy .. But one need not suffer from this disease to know that their life is not easy. Know that even beyond people who do not understand this disease there others that we support them because they are human and deserve the same treatment and much more to go on this life with that weight and live better and forces .. Kisses!
16th September 2010 at 21:27
Thank you from the heart!
November 16th 2010 at 4:41
Hello! I'm narcoleptic, but I have a psychiatric illness and that I struck down today, thanks to medical aid, is controlled. So I know what it is to have limitations in life. Congratulations for joining a blog. Sounds like a great idea. Greetings.
March 25th 2011 at 7:48
Hi all, I'm Chilean, I have 24 years or so ago I was diagnosed with narcolepsy 5 years the truth is that while we have some limitations for this rare disease, and I never stopped realiazar a full life and I have never allowed this gets in the way, of course I spent a few scares from time to look like almost falling asleep to the ways of the underground (train sudterraneo). oh spend whole evenings asleep on the bus on the way home .. I have managed to live with my partner school or work and live fully every day of my life so I invite you to never let this disease the limit because if you allow not only limited to PC but will their families and loved ones ..
I would like to know where I can help I would agradacer people who despite not suffering from this disease support the perosnas that if as the conprencion is a great hope for us all ...
greetings from chile
26th March 2011 at 17:07
Thanks Kael, as I say, this is to help promote, achieve rights and tell us more about the treatments. We spent all after the same things, some worse than waking dream, depends on the case. Thanks for writing and keep in touch. It was to do a meeting in Santiago but was postponed, in a few months hopefully possible! A love
Sleeping Beauty