Category: Uncategorized - admin @ 23:31
Some do not want to even begin. Go to the doctor and do not reach the PSG to know if you have narcolepsy or other illness. Others go further, studies are done, see the neurologist and do not attend the next query. There is one group that I think is a good part of the narcolepsy: those who convince themselves that it is important and what things we all do, as they say grandmothers.
But life starts and eventually to make the balance are the difficulties could be minimized with proper treatment and good laws.
Some people diagnosed at 20 years or more remember their empty hours of activity to be tired, fainting or fainting attributed to when it was actually an untreated cataplexy. Of paralysis and know that they flee, they are like so many fantasy and horror that few believe that a doctor or renamed Fleni institutes have in their questionnaires questions which seem to the argument of a Japanese horror film, and they do that know (and japanese Fleni Films)
The operators of years have learned to handle this but the law can play tricks.
Receipt of the Italian association of AIN narcolepsy a note to prevent a man sees another person alone and his son after the divorce judgment "excessive sleepiness". It is the argument of someone wanting to take the hard judgment to morally destroy another person, who was his spouse.
Students who need special hours should be a law for this.
Employees who can do part time or have your lunch hour dedicated to a nap (do this by those who have narcolepsy to sleep in the spare time!)
A person in divorce proceedings to be underestimated
A parent who does not want to recognize your child's treatment, in the case of a separation and alimony.
Drivers who may have an accident and not be covered by insurance!
Social Work and the famous PMO has to nacolepsia as a joke as much money spent on medication for life.
And the list can be quite extensive.
They hide, and I understand they do not mean to have that rare, unseen, not smell, and shows no marks on the body, which does not reduce functions to the intellect, and not to give the impression of "painful illness "No records, but ...... affects the hypothalamus, is not a simple sneeze, is a disease ... if they keep themselves hidden from left to help others.
Those others are a reflection of one and if no progress will be more injustices.
We are holding meetings, some attended has always excited others come and go, want to stay no one, neither they know.
I'm not the first to tell, or pretend to harangue anyone, just saying they should close all those who understand that treatment is needed (some more than others) to help with it and especially to leave something for the future, a step that facilitates that is diagnostic to understand what happens and not run away as fearful questioning in the Middle Ages that should be locked up if you have what happens ......
Nastassja Kinski, beautiful woman and actress, has narcolepsy. An example that is not vague pathology falls headfirst into the plate with Spaghetti and non-yielding on what society imposes, but who cares ...... they put on us?
It is interesting to undertake a battle and get something from this? Almost all of Latin America does not have free health plans, I think that narcolepsy does not kill the sensitivity, we must help and claim.
Sweet dreams to all
Sleeping Beauty
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December 2nd 2010 at 13:15
Hello Bella!! Here I am, giving me a quick little walk in your kingdom, sure I'll find something ... and it is. Beyond platada we spend on medicine, therapies, conventional and alternative, and other weeds, beyond the fact that nobody knows or understands what happens to us, beyond what day to day and night after night we live; beyond all that I believe that the worst of all is to come one day and say "I do not understand how with a little will and desire you can not move forward." Pum, hit me and call me Martha shot. Or maybe "you that you're so smart, how come they do not exceed this?". Or worse, "How well you look, you're cured". Double boom. Señoooooooora first and main: narcolepsy NO-TIE-NE-CU-RA. Second, dealing with symptoms is not about weight or effort or desire, or anything like that. Not that we are lazy and love to wallow in the mire of human misery. And third, is overcome a breakup, a defeat fobal favorite team, a triathlon. But being narcolético, no. You learn to live and live with what we are, with what we touch with the day to day, every week, every month, every year. Is a little clearer? No? Well, never mind, at least I did catharsis and downloaded. Well, that's it, I'm lighter, I feel less bloated and the advertising of the balloon violet yogurt. Bella, a big kiss and thanks for continuing there, sign at the bottom of the barrel. I attest that you are alive and well, for the benefit of us all ...
December 5th 2010 at 11:36
Hello Nana, catharsis is advisable for us because not only loaded with illness but with the awkward, blundering and stupid comments which do not. Very clear everything you say. We are so comprehensive that we were listening to the foreign toothache thinking out of respect (and have teeth too) that all pain deserves to be heard but .... no disrespect to our disease. Sometimes I just want to lash out at those without pointing out that even they may be at risk if you do not take it seriously, I do just so we are not discriminating. If we are not discriminated against is because few people have in their work, when out driving record and so on.
We will have to find ways to "get attention". For example: three or four labs to modafinil in Argentina, what can we say? Needless to Modafinil? stop buying it until it included in the Compulsory Health Plan? ...... The Ministry of Health of Spain warned of some adverse effects, to see if they stop doing or continue doing business without emptying our pockets, we will be months or even coffee who choose to bestow a benefit? Something is going to happen to listen to us .... make no mistake .... A hug and a loving Nana to all!
Sleeping Beauty
January 19th 2011 at 0:18
What a great catharsis, it is necessary, if we look with dark circles around the navel, and sleep tumbling think we heal ourselves, or as my mom, I have only dreams back, never going to accept that it is a disease ... I already story or nothing, in my worst days I say I had a very bad night or that I'm as anemia, and that's it, do not spend energy explaining what they will not understand ...
XOXO
Marcela