I sit in a bar with some fellow travelers sleep, poor sleep, sleep problems and he tells us that almost fell on Av 9 July by cataplexy.
For non-Buenos Aires tell them it's a very wide avenue of two-way and the speed is high.
We were always in trouble, I thought. But few would accept.
It is not cancer to have a prognosis of death. Not a lot of things, is what it is.
Lack of orexin in the brain, the hypothalamus
Gelineau syndrome,
I do not like the name Narcolepsy because people associate it with disease costing
Universities studying new trial of medications, laboratory billing with both hands his earnings with modafinil and the other for cataplejías and sleep paralysis (tricyclic antidepressants are used to reconstruct bedtime to sleep architecture) and we see how to explain this , almost alone.
Why, I wonder to infinity, will not talk about these issues?
I wounded a point that bothers me the denial of many and when you shake the jaw is not just for a joke or prank, it may be before a shock or blow of stress.
I always write the same thing, you can study, work, think, reason, etc.., Etc., Like everyone else. Driving motorcycle, bike, whatever you want, nothing is forbidden. Be a surgeon or a singer.
But I'd like airplane pilots had sleep latency test and polisomngrafias day.
There are risks of accidents, will be known over the years, the time will count those who were in trouble for automatic acts, or omissions and those with fatalities
Anyway, I met enthusiastic people who then gave up work to deny having a disease.
I met who told me a few days ago: do not read this blog that makes you sick!
That was easier to accept the things I could not fulfill in a timely manner, the time of another clear ........ not want to know, always preferred brand us from depression, vague, quedados and other nonsense, and I, with my certificate seal 500 times and several studies that confirm the pathology, which I answer? I have good neurologists? Nothing, I run with their stupidity.
If we do nothing, we pass over, like a car speeding down the avenue in the midst of cataplexy.
Let's think together how to move forward with this
Sleep well, no paralysis or nightmares of terror.
Greetings to all
Sleeping Beauty
25th January 2011 at 11:52
Saying goes, "not so blind that he does not want to see," and another that reads "out of sight, out of mind." All point to the same, denial rooted in fear, to avoid the first big step to be better: acceptance. Because then there is no going back, best to look ahead to a possible future that can bring us the answers we need.
Following in the path of popular sayings, there will be people who think "evil of many, little comfort," or maybe "looks at who your friends are and I'll tell you who you are" as if the mere fact of seeking company in those who spend therefore you, we will mark in front of others, as the bells around his neck announcing "here comes the leper." To them I say, "unity is strength" and with so much loneliness that accompanies us, with so much misunderstanding, at such ignorance, it is better to be alone but well accompanied by those who know firsthand what it feels like, without big words. In closing, I'd love to use the famous "early bird who helps him" naive but sin. That divine law is not for everyone but we can still get up early without successfully achieve our goals because "no matter how early dawn early." Before you start mixing the sayings as the legendary Red Grasshopper I leave with a simple "persevere and succeed." A special affection for the author of this endless chain, Bella. Greetings to you in this new year. Love, Nana
25th January 2011 at 11:54
Saying goes, "not so blind that he does not want to see," and another that reads "out of sight, out of mind." All point to the same, denial rooted in fear, to avoid the first big step to be better: acceptance. Because then there is no going back, best to look ahead to a possible future that can bring us the answers we need.
Following in the path of popular sayings, there will be people who think "evil of many, little comfort," or maybe "looks at who your friends are and I'll tell you who you are" as if the mere fact of seeking company in those who spend therefore you, we will mark in front of others, as the bells around his neck announcing "here comes the leper." To them I say, "unity is strength" and with so much loneliness that accompanies us, with so much misunderstanding, at such ignorance, it is better to be alone but well accompanied by those who know firsthand what it feels like, without need for big words. In closing, I'd love to use the famous "early bird who helps him" naive but sin. That divine law is not for everyone but we can still get up early without successfully achieve our goals because "no matter how early dawn early." Before you start mixing the sayings as the legendary Red Grasshopper I leave with a simple "persevere and succeed." A special affection for the author of this endless chain, Bella. Greetings to you in this new year. Love, Nana
3rd February 2011 at 18:37
Hi Sleeping Beauty, which was not long here, but it's nice that it feels understood, I mean people who suffer from this and know what you mean in your articles. I also think it's worse denial, there is no better way to happiness that we accept everything, good and bad, otherwise just walk through life looking for ways to plug the holes that makes us we do not want to accept.
My mother taught me from girl to laugh at the bad things that happen to me by my illness, you know, by the distraction, strange dreams, lack of concentration, sleep and everything else, instead of becoming angry that interfere with my daily life, so for those who are determined not to accept it, I also tell them that together we will do much more!
16th February 2011 at 10:56
Hi Sleeping Beauty, just because I'm writing today in a dilemma, a little moral or conscience and as much economic as it is driving long distances.
Usually driving around town, being "rested" and my dose of modafinil, but this to make a long journey made me wonder if I have to insist on the idea and go to my neurologist to prescribe me a higher dose this time or give up altogether and give way to that frustrating feeling of not doing something as common as driving. Then I thought ... if so, should not we have the narcoleptic and the rest of the people inabilitadas to handle some government assistance, such as a card that allows us to travel at a reduced price? so much easier would also opt for safer options for more expensive they are! no?
16th February 2011 at 22:49
I understand perfectly what you say.
If you wanted to handle, is in you and you feel safe. For life or risk, especially for you, do not take risks. Now if obtenés a certificate of "disability" sorry there is not another name because I believe should be a certificate of profit x narcolepsy (disease or whatever) and thus give you, according to the country, travel passes Free inside and outside the country, in the case of Argentina, discounts on medications and sometimes even financial support. I hate the word "disability" the same as "differently abled" not think so. Some people, like me, a disease that can not do some tasks comfortably and we are entitled to some benefits. Take years to change this name, but something is begun. If you can with that certificate, transport would no longer be an extra expense. Hope this helps, If not, go back to ask to see if we find a solution. A love
December 20th 2011 at 4:59
Hi Bella, I tell you that I'm fine mood, I will not lie that sometimes makes me want to forget about the disease, yet still could not. On Friday 23 December I Bs.As. While the time in the protocol I'm doing with the DR. Podesta, see it as positive episodes of cataplexy in my recovery is faster in the last week from 6 to 4 minutes, the problem is happening to me every day sometimes 1 or 2 to 3 times a day. I did a driving course because everyone insisted that as I was not actually handle and always felt that I was afraid, of course I did not drive after treatment, not even the bike. My question is, someday, I can not have more episodes? and ... back to work at 50 km from home?, I was never ever drive by bus and sometimes I had my husband or I will be thinking about is moving to a center which is 2 blocks from home? by your experience what do you think I can return to a normal life a little more? Affections. My phone is 0342 155 450 631. for anything you can send a message. Happy holidays!!
25th December 2011 at 23:55
Hi Claudia, I'm glad you found good answers. Do not think about whether to go at all, or now, think about having more controlled events. There are steps that must rely on hormonal cycles and who knows what else, relieved and then come back and well. Is controllable, that I have no doubt in my experience but we need to go little by little finding a legal framework that protects us laboralmete and whatever, as have other diseases such as epilepsy. You will leave feeling better, never cuts the dialogue with the specialist (who is) to go to which treatment is going better and what adjustments step in dosage, etc.. If you live in a place not too busy (as hell Buenos Aires) ask him to the doctor, I believe that riding a bike can be good, but confer on the word of a professional and your sense of security. We are prone to accidents, it is good to have in mind for our own good and not go after with a broken leg ..... A love and you're still in good taste to call Aires! Happy Holidays!