Communicating with you again because interrupts were many in this past year. It is not easy, but some of us (those who suffer or Narcolepsy Gelineau Syndrome) try to see the positive side and some even believe they are ill, very difficult to carry out all you mean by work alone. It's good to me, refreshing my ego, which those who suffer this disease have not stop because they have nothing to do with the hypothalamus, hypocretin and our lack of orexins with us a little applause for ourselves.
In the group of the NEA in Spain I meet a professor of Murcia with others gave their support to a student who is a charming guy and he put forward his studies. I say that his mother read this blog and comforting.
Eva Lopez lonely and daring in Puerto Rico opened a group home for people with narcolepsy and has very few comments, but it goes on and on and on.
And there are others who are always here as saying ... "do not give up."
Believe me, it's hard ... but maybe only continue on Facebook ...
Of course as with all, some ask for advice and help but can not be "present" or because they live far from Buenos Aires in Argentina or simply because they like to read, feel accompanied, know there are others who were diagnosed with the disease ... and until there are "fake" patients who enter, comment and then disappear
I did not expect too much with the blog and was wonderful if I tell people that I know, I have friends in different countries (not the name because they know who you are) and Sleeping Beauty have multiplied in the world.
ANHA has been created (in 2011) the Association of Narcolepsy and hypersomnia in Argentina, as is always the mail tengonarcolepsia@hotmail.com and time will surely be running the blog and the website of the Association with the data, status, authorities and other bureaucracies endless but necessary. Will be announced at the time the corporate, partnership and above all I ask you to remember, is an association of patients affected by the disease
Gelineau syndrome
It is characterized by the presence of hits of daytime sleepiness caused by a failure of REM sleep architecture and arousals permanent night. There may be
Cataplejías (Extreme muscle paralysis or weakness in part or whole body),
Sleep paralysis is often accompanied by,
Hypnagogic hallucinations (visions in sleep-wake transition) hypnopompic (sleep-wake transition) These symptoms have all or part, makes narcolepsy. Difundilo you until you become the nightmare of another, we've been through too many nightmares, dangers and bad times of ignorance of others.
Greetings to all and good dreams
Sleeping Beauty
