You can volunteer, approach, collaborate, give ideas, disseminate, tell your experience, tell how many doctors have left before diagnosis, to know how you take your environment, family, friends. Thinking that nothing comes alone, and less alone, that great things are good and extend to all who need them. In this [...]
2012 Tues March 2012
Meeting in Madrid. Have Narcolepsy? I recommend it. Join Now!
This time I post a meeting of the Friends of the NEA, especially Bea who is organizing. I hope you can read all those living in Spain and give a little walk that day. No need to pass the night. They can also go families. Read the info. A greetings to all around the world! Sleeping Beauty Encounter [...]
2012 Jan 19 2012
Why is it called Narcolepsy and Gelineau syndrome?
Reliable sources say that comes from the Greek Narke, "torpor" and Lepsis 'possession'. This includes what happens when a person has Narcolepsy and I will not be me who will change the name to a disease but socially, is a confusing word and even rejected because more than one person [...]
2012 Jan April 2012
Narcolepsy Living with a disease little known and almost unknown in Argentina
Communicating with you again because interrupts were many in this past year. It is not easy, but some of us (those who suffer or Narcolepsy Gelineau Syndrome) try to see the positive side and some even believe they are ill, very difficult to carry out all you mean by [...]
2011 July 21 2011
Narcolepsy (Gelineau Syndrome). Polysomnography compulsory
We always talk about how little access we have, without a prepaid medical or a social work at the neurological studies that accelerate diagnosis and improve the quality of life of people with narcolepsy or idiopathic hypersomnia, excluding other sleep disorders. And nobody listens to us ... But if we think differently and see [...]
2011 April 1, 2011
Small tips for a narcoleptic
Hello to the many who collaborate. Someday I would like to mention, although there are nearly 700 Face and would be difficult to do one. In two years we move a lot. If a disease little known and misunderstood, and you notice that a little more is understood. I still support the definitions that [...]
