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If you have any or all of the described symptoms, consult a neurologist and tell them your situation. Your doctor will be responsible for your question and if necessary carry out the corresponding studies.
Sleeping Beauty
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Sleeping Beauty on Narcolepsy ... I have a doctor around here ... maybe a human being?
Hi Fer, of course first of all you have to go to a neurologist and get tested. I will ask a couple of mates of Mexico around here for me to indicate to what place you go. A greeting!susan _peru on Narcolepsy (Gelineau Syndrome). Polysomnography compulsory
uhm great for someone I could say q health center peru encuetro these specialists I have a case but not if narcolepsy pliz help me solve my mom is graciz in advance XDFer on Narcolepsy ... I have a doctor around here ... maybe a human being?
Hello, I recently found out that there was Narcolepsy, always thought he was tired of more. In recent months has increased the frequency of sleep attacks. The truth preocupadon'm something, I would not take any medications and the rest of life have trouble falling asleep. Know of any doctor who can help me? I live in Mexico. Thanks a million!Sleeping Beauty on Why is it called Narcolepsy and Gelineau syndrome?
Nana, you're great, it certainly plays further explanation by the NAME of the disease than from the disease, you know all that I am in favor of the Syndrome of Gelineau that while 100 years passed and more, we ALL get to think what means in this world today to start saying ... narco narco ..... what? asks inmediatante associating with drug trafficking, vote for a change jejejejejejeej (I looked in face but you do not have the possibility to request friendship request d!) A BIG HUG to you and the pa Patagonia ;)Nana on Why is it called Narcolepsy and Gelineau syndrome?
Oh Bella, always in the key ... if even I wrote a story with this theme! When you open your mouth to tell at a glance that you have NAR-CO-LEP-SIA, cleverly your brainiac doubt, recalculate and say: I have a sleep disorder, and blah blah. No wonder, because if empezás on the other hand, people stay with that word in the head and understands nothing. Still, even if you get tired of explaining, no one understands you, right? Bella, I love you and send you a big kiss. And I'm going because I grabbed a "Narke" terrible ... Greetings to all. LullabyNana on Life in Sleep
Hello Fernando, I share with you the subject of modafinil, and chronic depression, like many other narcoleptic ... but what struck me in your post was the issue of disc herniations: I with my just turned 36 years, I have three herniated discs, cervical and lumbar two. I would like you to tell me what is the link between narcolepsy and hernias, if you found it, and how to improve because I am in search of ways to improve my quality of life. I tell you the last cervical hernia cause me headaches, dizziness, ringing, and I was referred to a physiotherapist does RPG (global postural rehabilitation) which is a very effective technique for these cases. Any information you can provide, will be more than grateful, and feel free to ask me anything. Greetings and have a beautiful day ....fmlilly on Life in Sleep
People, is a neuroscience center that has an analysis of sleep in the building next to the hospital teacher. She does not treat patients but may refer to one that can make life easier. As I said in previous comments I lived some years taking Provigil, mienstras could use it to keep my life profecional active, having a job and meet the commitments of this. Friends, do not find the cause of narcolepsy, so be very difficult to find a way to cure it. We must learn to live with it. I advise you to use the drug by the time they need to adjust their lives to this condition. Seek help from a mental health profecional, the need ... My psychiatrist is Nelsa Rodriguez (787-256-0273), is in the marginal Loiza Valley. She conose our problem and will understand, guide them and help them adjust their ...Norma Hernandez on Narcolepsy (Gelineau Syndrome). Polysomnography compulsory
JOBS FOR YOU PUT MY CONTACT gimnasia@live.com ESTARVEN STANDARD FOR ALICE MEYERNorma Hernandez on Narcolepsy (Gelineau Syndrome). Polysomnography compulsory
GREETINGS FROM MEXICO TO ALICE MEYER, NORMA narcoleptic 31 YEARS AND DOES NOT TAKE DRUGS BUT HE NEVER been paralyzed or anything like that, BUT I fall asleep.Norma Hernandez on Narcolepsy (Gelineau Syndrome). Polysomnography compulsory
Hello Bella, Greetings, I hope you contact me in Mexico, I have 31 years
September 3rd 2009 at 19:47
03/09/2009
Don Torcuato Argentina BSAS
Looking for information about disease I have found this blog, I communicate with you because I have a dream epilepcia in 6 years and I still do not have treatment progress and that the only solution that I offer is to take phenytoin is a capsule containing Phenytoin Sodium (known as Epamin) 100 mg, which is to be an anticonvulsant therapeutic action, Antiarrhythmic. Beyond the little interest and lack of will that my neurologist has me still looking for information to be able to treat the disease but with little success. WANTED TO ASK THEM IF I COULD CONTACT CAPACIDATOS DOCTORS TO TREAT THE DISEASE.
Matias Escobar
September 3rd 2009 at 23:11
Hello Matthias, I have drawn your question and I hope to give an orientation to your topic. Do not be discouraged, little by little we will find solutions for everyone, myself included. It's a long way in that diagnoses are not always accurate. If you want to write privately to tell me what your situation in terms of Social Work adjust my search ..
A hug
Sleeping Beauty
December 18th 2009 at 3:15
Bella! I Letty de Queretaro, lost the data of surveyed a boy q: S I have pasted in a scrapbook, questions with the answers but I did not score in the msn and can not find the info here. Please! tell me where to contact and pass my answers if you enter it Ain?
Kisses and .. sweet dreams!
December 18th 2009 at 5:51
Hello dear Letty, it is called Rodrigo Bustillo and dir is rsaosk@hotmail.com !
A hug and sweet dreams for you tb
Sleeping Beauty
26th February 2010 at 10:58
Hi Jack
MY NAME IS SUSANA AND I HAVE A DAUGHTER OF 12 YEARS ALSO TAKE EPAMIN IN MEXICO THIS DR. LIFE IS A TREATMENT PADILLA TERESA AND I BELIEVE THAT HERBOLARIO RUNNING THIS IS YOUR MAIL
vidateresa@hotmail.com I HOPE YOU PUT IN TOUCH AND I THINK NOT get discouraged MY DAUGHTER HAS A GREAT ENERGY AND ALWAYS LIKES TO SWIM IS AT CONTROL AND OBSERVATION. GOOD LUCK AND HAVE THAT MUCH FAITH TEN. CUIDATE. I HOPE answer me.
27th February 2010 at 14:06
Hi Susan, I understand that in Mexico and that your daughter has narcolepsy? Or epilepsy?
I am interested in what the herbalist who works with the Dr that you mention. I wish that if narcolepsy is tell us there will be more interested in writing, visits this forum has a lot in Mexico. Thank you very much for your support!
Sleeping Beauty
3rd April 2010 at 16:05
Hi!
I tell my story queiro ... I'm narcoleptic, for very many years, but recent discoveries will make 7 months. And when I discovered, is literal.
After having completed high school (since I have no memories of episodes have there), and started college, I started with these sleep problems.
All but absolutely ALL the days, had episodes of falling asleep (body feel lightheaded) where either (always sitting, never I fell to the floor or anything like that). Were episodes of seconds, minutes, no more than that, but could not control. I knew I was sleeping, that I closed their eyes, and inside me said "abrilos, you're staying asleep", but it was useless, could not. He listened to everything that happened to my alrrededor, if I was in class and sleeping as it was, was still listening to the teacher, and as soon as I woke up (as if he had slept 5 hours straight) could follow the lesson to perfection. People around me could not believe it!
Whenever I had a new teacher, I had to sit with him and explain my situation "inexplicable" because until then I did not know I had, but knew something was.
In my house, they treated me like I was tired and fell asleep, being awake until "late" (00:30 pm) on the computer (as anyone who might read this.)
is worth noting that never in life I could see a whole movie, the saw in volumes, parts. coletivo a trip (coach), was sleeping, but never stop happen, a labor meeting, the same.
My answers to the world, with the typical question and usual routine - Meli Hello, how are you???, Were always the same, - "dead, I can not but with my life, really tired."
I knew something was wrong, it was not normal, wearing the same life as all my friends, and yet had these episodes I could not control them!
I went to all the doctors have or might have, I did study everything you can imagine, and that came out?? it was fine, everything was good, I had nothing ... I went out of the doctors, BAD, SAD. He wanted me to find something, tell me, "Look, you got this and this, you took this and ready" but not! I was nothing anyone.
one day, with total curiosity and wondering why I did not do this before?, enter google, and wrote "I fall asleep EVERYWHERE." Into a forum there, and then another I took another, and in the midst of a forum, someone named NARCOLEPSY word, immediately afterwards, also the google search and found there the symptoms, hisotrias, this blog and everything that said, I WAS! I felt totlamente identified.
I showed my family that ended up asking me apologize.
I read that I had to resort to a neurologist.
I went to a sleep clinic, there I did the first studies to see if in fact what I have are apneas in sleep, and rule out narcolepsy, but no, the study came out perfect, since I sleep until I get up, sleep well!
thus, was still studying the Narcolepsy, which was a bit more complex, but I did, and went finalemnte YES!, I have narcolepsy.
My doctor medicated. I take a pill called MODAFINIL of VIGICER, and the truth, my life changed 100%.
I had anymore episodes, I'm awake and I sleep at night without problems!
I hope my testimony has been served. ANY questions, concerns and others, I am to answer them!
Regards
Melina, from Argentina.
4th April 2010 at 9:54
Hi Melina, I'm glad you found the name to your sleep problems finally Narcolepsy. I understand, general practitioners even remotely send you to a neuro, at most a psychologist or give you vitamins to increase performance (to be useful to a system instead of improving the quality of life)
I ask you something: 100% better? so you feel? It seems to me well, but almost impossible. You did not sleep paralysis? Cataplejías? Modafinil wakes The only part of the day (my good in idiopathic hypersomnia), so I ask.
If you are interested meet, contact and wrote a couple of people waiting partcipar of our meetings. If you give your private information on someone will contact you
A greeting and you keep very good!
Sleeping Beauty
17th May 2010 at 15:04
Hi Rodrigo! I also am taking modafinil, I take a pill (nose of all that is) every day with breakfast. As you say this helps me a bit, but later, usually after eating I start to "sleep" would have you believe k k I take more consultation with the doctor?
22nd May 2010 at 19:38
Hi Lydia ..! I wish I could help you a bit more but I'm looking for information as well. All I can say is that I take a tablet Vigicer (Modafinil) to get up (before breakfast or lunch) and despavilarme helps me and that I will feel sleepy while I prepare and ready to go to work. However, I get sleepy later if I'm not active. If I am a long time on the computer, it also gives me dream ... If I wake up late, ie around 10 am, but I can not take Modafinil vay Diculpa sleep ... can not help much, for now, as I said Bella Sleeping, I have turn to a specialist in sleep medicine and makes the consultation on Modafinil ... Good luck ..! Greetings ..!
27th May 2010 at 15:03
nececito know a doctor who treats the narcolepcia
27th May 2010 at 22:18
A neurologist always, prefrente his specialty is sleep disorders, this varies by country and city where you live.
A greeting
27th May 2010 at 22:28
Hello, I I attend with Dr. Ferrero of Argentina.
the truth that I attended 10 and I have narcolepsy solcionado my problem (I hope so follow haha).
Regards
Melina
28th May 2010 at 21:31
I do not understand this, which I have been diagnosed 10 years ago and all you have to clear that will not heal, it relieved us, it is giving false hope to improve the total, have you seen some modional nor going. to improve life is that we serve, but to let you know that will not heal and that says science and recent studies. Greetings to all
1st June 2010 at 12:34
Hello, I am the Life Dr. Teresa Padilla, Mexico City, I see that Susan mentioned in this space. I just wish that I clarify what is epilepsy and treatment with excellent results. I also try illnesses. I am a general surgeon and medical I basically busy to exercise alternative therapies as possible attached to everything natural. greetings and best wishes for your health.
10th June 2010 at 18:03
Dr, in the forum there are sometimes questions about alternative therapies. With Narcolepsy still waiting for the doctors (I speak from Argentina) at least know of it without putting weird face. I hope that homeopathy and other drug dealing to add something that benefits us.
Thank you for your greetings and good wishes!
Sleeping Beauty
11th July 2010 at 13:34
Hi! of Chile, also I have Narcolepsy and modafinil also gave me, but tb agree with someone who said that I use and the morning to stay awake but just after 3 pm type down a dream that I necsito sleep ... so is that what the final solution?? and 200 mg modafinil, makes me go all eldia good, but at night nome awake, the end is another problem, is desperate not to find a definitive cure,
regards
Kty
26th July 2010 at 3:42
Hi, I have 17 years, and for 2 years I have sleep during dia.Por example, when I sit in a chair aduermo I yawn a little and during the day to 2 years menudo.Ya ocurre.Fui me to the doctor and I did a blood test and told me he was perfect, and I diet of athletes.
My mother gives me vitamins but I do love.
What do I do?
Haze 2 summers I did very bad times, but I doubt that has to do because now duremo 7.8 hours
21st August 2010 at 10:00
Greetings from tenerife.yo suffer from narcolepsy with cataplexy,
my treatment to date is (XYREM-Modiodal and PROSAC)
I do well, I can not sleep more than 2:45 escapando.me followed but I would like to change our experience of illness
which is not very easy to carry.
24th August 2010 at 12:46
Hello Jesus Angel, I can not sleep more hours at it affects many of us, myself am trying to find medical solutions. It took almost the same as you but not in Argentina Xyrem ..... A greeting
September 24th 2010 at 19:58
for I am a housewife.
and after 2 months that I left on vacation and leave my 25 year old daughter, found me back in shock,
exactly as the days went out the way they are not sleeping, but not of its own if not for that forced some criminals sent by the
to dial HUMANIST (ACCORDING TO HUMANITARIAN VERY) FHER vocalist MANA. COME AS THE FRIENDS OF AUDIENCE?
I was very distressed look on the internet that minds about not sleeping and exactly what I found here she goes,
very decentralized, nervous mistakes in writing that she was being super intelligent recognition came with the end of his career, I AM DESPERATE
she is no longer the same and just looking for a reason to attack me in a verbal insult and all, being that she was the most noble and good girl of his generation recognized by all teachers as the best. and even held hostage trapped type, I'm very very upset because now he wants to practice diving and not sumergiese few meters into the sea, HOW COME? WHAT MAKES THE MANA FHER OF OFFENDERS AND COUSIN AND YOUR FAMILY? PASS THE WORD MY DAUGHTER IS IN PLAYA DEL CARMEN IN GUADALAJARA ME AND I AM VERY CONCERNED AND DESPERATE
25th September 2010 at 23:40
I read this bog that help me with stories that are similar to those of my narcolepsy. This story has little to do with our disease. I do not understand this disease and has nothing, Laura Cuz you should go to seek help elsewhere. regards
26th September 2010 at 12:05
Hello, you acomsejo you enter the Blog of narcolepsy in Mexico. I honestly do not know what to say about your situation. A greeting
http://www.narcolepsiamexico.com/
February 23rd 2011 at 4:22
Hello, I wanted to ask a couple of things if you do not mind. On the one hand, when and at what age did you start to have the first symptoms. On the other hand, where do I go recomendas consultations, because I have the problem of having a 24 hour sleep feeling I do not get to sleep easily but the feeling is good. I am a young person so that's why I asked how old your symptoms began.
28th February 2011 at 4:53
hello! I have Narcolepsy several years ago, I read what they wrote and also many things happened to me or happen to me. I would love if they come together in Bs AS know and participate, sometimes too complicated and those around you fail to understand how you feel. thanks
4th June 2011 at 7:18
hello how are all ... wanted to ask to see if anyone has taken birth control pills and being medicated narcolepsy tyeniendo for that .... and if someone had a child what was your experience??
15th October 2011 at 18:06
holaa am Lenibeth Pardo and I have or rather I did a blog about narcolepsy is an issue that I find very interesting, well here is the link to see and hopefully follow. Bye kisses
ps: I'm from Chile
16th October 2011 at 11:29
Hello! to all who suffer this disease advise that try to consume less sugar, carbohydrates etc ... preferably by eating enough protein helps relieve day dream ... at least I checked when I was diagnosed 3 years ago hypoglycemia and following this diet, I realized that in 1 year I suffered from Narcolepsy NO, it does cost deprived of carbohydrates and also adelgazé lot.
Ask the Doctor: have something to do with the topic of sleep feeding???
Regards,
Kty of Chile
30th October 2011 at 19:29
Lenibeth of Chile, do not get the link that you mention your board, you could write it again? In Chile there are people with Narcolepsy often write in this blog and the Forum or Face, you may want to add!
31st October 2011 at 15:43
Greetings to everyone, as you can know I suffer from narcolepsy with cataplexy.
treatment took about four years ago, is: indecent, Modiodal and Xyrem.
you rock a few stopped treatment take effect, the problem was poor diet
I had, now I try to consume less sugar .. good about what we said our partner Kty.
now I have a diet, started recently that the results are am +. Take care of food, body and mind will thank you and of course we también.un hug for everyone.
November 26th 2011 at 19:34
My daughter has MS m MANIFOLD is 42 k is not a treatment for breakthrough